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Day at Toledo Zoo Supports Dystonia Research for a Cure

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1st Ever Toledo Dystonia Zoo Walk Takes Place Oct 5; Brain Disorder is Little-Known but Surprisingly Common

TOLEDO, Ohio - EntSun -- Toledo is one of 13 cities to host a Dystonia Zoo Walk in 2019. The purpose of the event is to raise awareness of dystonia, a disabling and under-recognized neurological disorder. Proceeds benefit the Dystonia Medical Research Foundation, which supports urgently-needed research toward a cure and programs for individuals and families impacted by the disorder. Dystonia Zoo Walks attract 5,000+ participants annually.

The Toledo Dystonia Zoo Walk is not a competitive race and does not have a required route. It is a family friendly event that encourages everyone to spend the day at the zoo and enjoy all that the Toledo Zoo has to offer. Zoo Walks unite local families impacted by dystonia and invite the greater community to learn about dystonia and support medical research. National sponsors include Allergan, Merz, and Ipsen.

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Dystonia is characterized by extreme, involuntary muscle contractions that result in twisting, repetitive muscle movements and abnormal postures of the body and limbs.  Common signs include twisting or abnormal movements of the head and neck, excessive blinking, a breathy or choking voice, hand cramps, or a twisted foot. No fewer than 250,000 Americans are living with dystonia. Estimates suggest that 70% of patients are misdiagnosed prior to a dystonia diagnosis.

WHEN: Saturday, October 5, 2019. Registration opens at 8:00 AM. Event begins at 9:30 AM.

WHERE: Toledo Zoo & Aquarium, 2 Hippo Way, Toledo, OH

WHO: Kristin Cinglie of Monroe, MI is organizing the Toledo Dystonia Zoo Walk to promote greater awareness and to bring together individuals and families affected by dystonia in the local area. Cinglie was diagnosed with dystonia in 2012 after years of misdiagnosis. A chemical engineer and lifelong athlete, she began noticing severe cramping and tightness in her leg and shoulders while training for a half marathon. Today, Cinglie experiences chronic, painful muscle spasms in her neck, torso, leg, arm, and feet. She often needs a cane to walk, and experiences debilitating headaches. Cinglie  hopes the Toledo Zoo Walk may yield interest in a local dystonia support group.

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The Dystonia Medical Research Foundation is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families. Additional information is available at https://www.dystonia-foundation.org

MEDIA: For information and to schedule an interview, contact Kristin Cinglie at 304-834-0816 or kkcinglie@hotmail.com. Event details are also available at: https://toledodystoniazoowalk.swell.gives/

Contact
Jessica Feeley
***@dystonia-foundation.org


Source: Dystonia Medical Research Foundation
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