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This Aplastic Anemia Family Thought They Would Lose Their Home

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When four-year-old Avery collapsed, doctors warned she might not survive the weekend.

DALLAS - EntSun -- Avery was bruising easily. She was constantly exhausted, refusing to eat, and struggling to keep up in ballet class. When Avery suddenly passed out, her parents rushed her to the doctor in a panic.

In tears, Avery's mother explained everything that had been happening. After a blood test, the doctor called a neighboring children's hospital and instructed them to admit Avery immediately. They were told that Avery likely had cancer, and without urgent treatment, she might not survive the weekend.

It wasn't cancer. Avery was diagnosed with aplastic anemia, a rare disease that prevents the body from producing enough blood cells. Doctors told the family that a bone marrow transplant would be Avery's only chance of survival.

Avert remained in the hospital with her mom Hayley, physically carrying her from test to test—X-rays, CT scans, and biopsy after biopsy—while trying to learn about this devastating disease. Avery's father stayed home, three hours away, to care for their other children.

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Traveling back and forth to the hospital required Avery's father to reduce his work hours. So their income dropped while medical bills mounted. The financial burden was overwhelming.

When their landlord told them, "You still have to pay your bills," the family thought they might lose their home.

"Avery's diagnosis was rare, and I was told there wasn't any funding," Hayley explained. "Many people warned us, 'Good luck paying your medical bills.'" But after joining an online aplastic anemia support group, someone told her about the Icla da Silva Foundation.

https://youtube.com/shorts/YjJm8JtAoXg

The Foundation helps patients preparing for a bone marrow transplant by removing financial barriers to care.

"Receiving support from the Foundation took away some of the burden and a lot of the stress," Hayley said. "Avery's treatment, and our ability to navigate the situation, gets better every day. We are finally moving forward."

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In a powerful moment for the family, Avery's ten-year-old brother was identified as a matching donor. Avery recently received a lifesaving bone marrow transplant from her brother and continues treatment as doctors monitor her recovery.

Families facing transplant often struggle with expenses not covered by insurance. Transportation, lodging, and even meals become critical. Support from the Icla da Silva Foundation helps remove those barriers so treatment can continue.

Your donation will help another patient reach lifesaving treatment - https://icla.org/when-a-diagnosis-changes-everything/?form=FUNJZFXEVAY

Learn more at www.icla.org

Contact
Bret Itskowitch
***@icla.org


Source: The Icla da Silva Foundation

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