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Fighting Fear Together on World Encephalitis Day


Encephalitis Global, Inc. Wendy Station - World Encephalitis Day
As World Encephalitis Day approaches on February 22nd we remind others that they are not alone.

VANCOUVER, British Columbia - Feb. 14, 2018 - EntSun -- In the year 1999 I had encephalitis and was hospitalized for four weeks. Once home, I was booked to visit my neurologist every three to six months. I respect this, as his job was done – my life had been saved. But… what now? My family and friends searched for further information and came up empty-handed. For how long must my parents sit with me all day? Why don't I hug my kids? Why was I crying all the time? Why was I always so afraid? I looked great…why wasn't I acting great? How could others help? Why did I sleep so much? What should others say to me? When would I be back to normal? Can anybody help? So many of these questions were not worth booking yet another appointment with our family doctor… but they were very important questions to which we needed answers! (Wendy Station)

Harry Houdini once said, "My chief task has been to conquer fear." Post encephalitis, one may struggle with physical, emotional, behavioral, and social deficits. The fear in households touched by encephalitis is a fear of the unknown, as issues may take days, weeks, or even months for issues to develop and become apparent.

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Encephalitis mentors are people who have previously experienced that fear. People who have already walked the difficult pathway others have newly arrived upon. Survivors and caregivers have a million questions, and no answers. They benefit when they can ask questions and learn more from people further down the road in this experience. The patient and her/his family benefit from learning more about the issue at hand and how to deal with the problems which can arise. The big issues AND the smaller issues both feel huge for the person struggling. The mentor can guide by sharing skills, experience and knowledge. In discussion with an encephalitis mentor the family learns more about the issues the patient may be struggling with, and how they can help.

Since 2008, people from more than 95 countries have joined Encephalitis Global's Discussion Forum. That's more than 6,900 survivors and caregivers sharing their kindness, their experience and their knowledge as they help each other every day.

Feedback from members of the Encephalitis Global Forum includes the following. "My son survived Herpes Encephalitis in 1994 at the age of 17 months. Encephalitis Global has opened many doors for us with regard to therapy, life goals, and friendship. Wendy is a wonderful teacher and mentor to all who survive E. Thank you for the knowledge we have gained thru this wonderful organization."

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Another says, "Medical science has lots to learn from our shared experiences and adaptive and self-rehabilitation methods. Encephalitis Global has opened a door into the post-E world."

A third writes, "Encephalitis Global has been a lighthouse in the storm for me. I can't bear to think how I would cope with my situation without the support of the Encephalitis Global community, where I find support, encouragement, links to information, and perhaps most importantly, a place where I can connect with people who understand the far-reaching impacts of encephalitis/encephalopathy, and who stand ready to reach out with a helping hand to those who struggle with these diseases, whether patients or caregivers."

The ability for people touched by encephalitis to interact truly does help conquer their fear. Our Encephalitis Global Inspire Forum is the largest forum in the world discussing encephalitis and autoimmune encephalitis on a daily basis. As World Encephalitis Day approaches, we encourage all members of our Forum to be proud as they continue meeting and helping encephalitis survivors and caregivers from around the globe.

Contact
Wendy Station, Founder/President
Encephalitis Global
***@encephalitisglobal.org


Source: Encephalitis Global
Filed Under: Health, Medical, Non-profit

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